I think it is called Nutragenia,not sure if I got that right,but it is a rare bone marrow disease,witch can be terminal,she is 5 years old,has had a bone marrow transplant and a lung biopsy with a transplant in her lungs both have failed,my daughter is a nurse at a childrens hospital in Texas,they take one day at a time,they will not due anymore transplant now,when she got out of the hospital this last time she asked ((Mommy can I go back to Kindergarden now,but she cant because any illness she might catch could kill her.She is just a very smart,sweet little girl that has fought so hard to live and just wants to be normal