Wow. Just reading all the messages, is wonderful. I've been dealing with it & multiple other ailments for soo long. Sometimes, I just sit & cry. It just makes me feel so helpless. And like most, I look young & healthy. It runs in my family, even the men have it, among other things.It's great that your bringing awareness to this debilitating monster that affects so many people. Keep up the good work. And, Please make more of these bracelets. I would love to have one. Peace, Angel
im glad there other people out there i have it to its hard to talk to people about it like my boyfriend family its been really hard on me i was trying not to work but he said we need money i trying to get dis. i dont know how much more i can take
Thank You! for your lovely Fibro awareness bracelet. I was diagnosed with Fibro for over three years but had it for thirteen years. It was a roller coaster cause all the doctors would tell me that nothing was wrong till a Family Nurse Practitioner told me that I had Fibro.The pain of Fibro is so intense that words can't explain how bad it is. I thank the Lord for giving me strength each day to cope with it. Again...Thank You! I don't know how much I appreciate your will making a beautiful piece of jewelry. Have a Blessed weekend. Love & soft Hugs! Don't give up!!! <3
I suppose I'm one of the "lucky" ones. I was diagnosed with Fibromyalgia ten years ago, along with RA & OA. I had such a weird variety of symptoms (I thought), so I did my own research. Then I was lucky enough to find a doctor in the area specializing in Fibromyalgia. I made it through disability the first time I applied, and now have my husband as my in-home care provider. I've found that several groups on Facebook really help me a lot (like Fibro Fighterz, Behind Fibromyalgia, Fibro Affirmations & Fibromyalgia Network), giving the latest research, tips and empowerment ... it helps to know we're not alone, and to be reminded that there really IS progress being made in research.
there are alot of good groups on FB. i unfortunatly have not been so lucky , but i am so happy for you. this is not something i would wish on anyone. but you are so right the support groups do help so much, it doesnt stop our pain but it makes it easier to bear to have a support group who understands <3
This is the first time that I have seen anyone call attention to the awareness of Fibromyalgia. Thank you so much for that. I have Fibromyalgia & MS. Honestly, I think the pain from the Fibro is worst sometimes than the MS. F&W
I have fibro, too. Along with chronic fatigue and bouts of depression. Restless leg syndrome, chemical syndrome.... the list goes on. I hurt my back last summer working in home health and that made my fibro of 30 years go from bad to worse. I love the jewelry you make for awareness. Fanned and watching
many of us have multiple dieases and illnesses/syndromes it seems once you have one its like domino effect i have all you have listed and then some. i cant help but think that fibro, chronic fatigue chem syndrome are symptoms of a deeper cause yet to be discovered . and we need so much more research to find the cause
I to have dealt with both on my own. Went to my 3rd Rhumotoligist ...:-(. It's so stressful to deal with the uncompassionate , jerks. I don't look sick just a little tired!!!!!!! Love the bracelet. Fan me if you like!!!!!
yes i do along with chronic fatigue and several other health problem. making jewelry keeps me sane and its one of the few pleasures left to me after fibro and cfs . i was diagnosed around 15 yrs ago. i make many types of awareness jewelry. how are you coping with your fibro? its such a terrible illness and health people seldom understand what its like to live with chronic illness. i am pleased to meet you:)
l am also looking for something for my mom to wear to notify that she is diabetic. We have bought her a medical bracelet but she does not wear it. I am hoping if I can find some type of necklace or bracelet that she might like enough to wear all the time. I was on your facebook page but didn't have time to really look. I am going back on there tonight when I have more time. Thank you for making all these awareness bracelets because I know some of the pain you feel and there are some days I just don't feel like moving at all. You are an awesome person.
i posted a photo of a med id charm i found on ebay that i ordered for myself and will turn into a bracelet, i asked if anyone would be interested . i dont care for the old type they are not pretty. check it out and see what you think.
this is a nice bracelet I have had fibormyaigia for the last 30years they always told me it was in my head. then about 15 years ago they gave it a name. I would love to have one do you sell them if I can't win this one.. the pain gets the best of me some time I just want to sit and cry. May I also send you a friend request on facebook . I hope to hear from you god bless to you and your
i was diagnosed about 15 yrs ago had it alot longer and there are still doctors that think its all in our heads. and yes i have a jewelry group on facebook i sell jewelry and i do alot of the awareness jewelry i try to keep prices low and inexpensive because this day and age every penny counts. are you on facebook? my jewelry group is called Janies Jewelry Lane and my name is Janie Mae East Lierle i havent been able to work at a job for many year4s so i make jewelry . i have several health issues . and most of the people who buy jewelry from me have fibro, chronic fatigue and Lupus. i have all three. so i try to keep prices low but i use real crystal and stones. my jewelry ranges in price from 5$ to 35$ a fibro bracelet6 like the one i hAVE LISTED HERE IS EITHER 10 OR 12$$ AND 2 OR 3 SHIPPING DEPENDS ON HOW HEAVY THE JEWELRY IS. A FIBRO BRACELET POSTAGE IS AROUND 2SO PLEASE LOOK ME UP.
I have never seen a bracelet for fibro awareness. I am happy to know there is one out there. I was reading some the post and I too have fibro plus other severe back and pinch nerve issues. If I am not able to win this one I do hope you put more on here for bidding so maybe I can win one. People don't understand the underlying pain there is with fibro and there is no way to make them completely understand. Thank you again for making the type of awareness bracelet.
i will put more on and i also have degenrative disc diease in my spine damage to my neck hip lol. i feel like i am falling apart. are you on facebook? i have a jewelry group i post my jewelry and i invite anyone who wants to buy or sell jewelry or crafts like crochet ect. look me up on facebook i make all types of awareness jewelry i have multiple health problems myself. and since most people with chronic illness do not work i keep my prices low. as long as i can pay for the beads and postage. because life is too tough as it is. and you are so right people don't understand whats its like to live in constant pain and not be able to do things normal people do like go shopping to buy groceries takes a terrible toll on your body
thank you for bringing awareness to this horrible condition. I don't expect those who don't have it to really understand but, they could be a lot more empathetic and tolerant. I am sorry you have suffered so much and wish you all the love and light in the world.
It's nice to meet you too. I was diagnosed with fibro about 10 years ago. I suspect I have cfs also but haven't really pushed the issue with my Dr. I have 3 children and have had to just modify my life and pace myself. I tend to forget how good I'm doing until I have a REALLY bad day. It is just so hard to deal with. It effects every aspect of our lives. It's a blessing that we don't 'look sick' because of we looked as bad as we felt... Well you know, but it makes it hard for people to understand or remember. I'm on disability now for probably 8 years. I'm so thankful for that but we barely make it financially. I try to always remember what a blessing it is to be home for my kids. I just miss having extra income and making a contribution to society. So I've taken up crochet. I absolutely love it and hope I can make some money with it because I have some great ideas for designs. We'll see. May God bless you and your work with jewelry and fibro awareness.
are you on facebook? i have a jewelry page where jewelry on my page. its called Janies Jewelry Lane. my name is janie mae east lierle. (east is my maiden name) send me a freind request .bi also have not been able to work in a long time, i make jewelry to earn extra money, like you we just have my husbands income. we have on child , i had ovairian cancer shortly after my son was born. its a hard life but i try to live it and help others if i can. so please post photos of your crochet and maybe you can get some sells. .